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Megan MorrillMegan Morrill

Twelve year old Megan Morrill of East Grand Rapids, Michigan is a courageous and happy girl battling an extremely rare and life threatening disease know as Cystinosis. We hope that you will take a moment to explore this website and learn more about this very aggressive disease.

Hopefully you will make a commitment to help support research and assist us with providing Megan with the care and medical resources she will need to continue this courageous fight until a cure is found.

Megan's 24 hour Medication Schedule...

Megan was 3 1/2 years old at the time she was diagnosed. It took many hospital emergency visits and 3 pediatricians later before severe dehydration put her at DeVos Children's Hospital. After a few weeks, Megan was transported by ambulance to Mott Children's Hospital at the University of Michigan where a final diagnosis was made. This diagnosis drastically changed the dynamics of the Morrill household. Since then, Megan has been getting proper treatment via a G-Tube and hourly eyedrops and medications while awake and asleep. She is at end stage kidney failure. Family members are being tested for a possible living kidney donor. Dr Timothy Bunchman and his team at DeVos Children's Hospital have been expertly managing Megan's care. They are like a second family to the Morrills.

 

 

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